Research resources

Hi Friends,

I know I made a commitment a while back to a series on clinical trials and on resources for those who might be considering participating in a research study. I am working on collecting resources, but frankly it is taking time to evaluate the sources I have found.

Most of the resources I have scanned so far are podcasts and news sources. The ones that are targeted toward clinical research professionals are pretty dry and a little difficult to endure (even for me). The ones that are more “mass media” related tend to dumb down the research in ways I do not believe are helpful.

I am enjoying “Short Wave” by NPR as a science podcast generally. They report on the COVID situation of course, but they also report on a broader range of topics. I especially appreciated their coverage of “challenge trials” and the ethics of people volunteering to exposed to the virus. In a relatively short time, they manage to convey useful concepts that may help non-scientists understand important principles.

Short Wave
A snippet from the site of Short Wave

I continue to hunt for better material, or might just start creating material on my own if I cannot find sources that serve. I am never one to re-invent a wheel so scanning the landscape was my first part of this project.

Be well. Feel free to ask any questions here if you imagine you would have if you would consider volunteering for a research study. That way I will know what your doubts and fears might be and can better speak to what comes up. Thanks!

cristy@meximinnesotana.com

 

Trials and tribulations

Hi Friends,

I have been wondering how best to use my expertise and skills to be of service during the COVID-19 situation, and brainstorming ways to put my experience to good use in a new job.

Offering yoga online has been very fulfilling, and it has allowed me to contribute to keeping a small business running that had to close acupuncture operations for 2.5 months. I love getting to know my students better and the Sunday (Re)treats have been my favorite.

It has also occurred to me that clinical trials are running for treatments and for vaccines to help save lives and stop the spread of this infection. I have 12+ years of experience as a clinical researcher, and I am good at explaining technical concepts to non-scientists in a way that makes sense. Mission taking shape…

Web MD coronavirus picture
Photo credit – WebMD (COVID-19: What You Should Know)

I have noticed that Universities have difficulty explaining clinical trials to potential participants in ways they understand. Many of their resources are text-heavy and use a lot of technical terms. It is a chronic problem for the informed consent process as well, which is required before volunteering to participate in a trial.

In service to helping people understand which trials might be the best fit, I am considering a series on de-mystifying the clinical trial process. It may be a matter of curating the best content that is available and sharing it. I am strongly committed to advocating for participants who may be confused and want clarification of their questions.

The ACRP (Association of Clinical Research Professionals) explains that with the pandemic looming large at hospitals, many trial sites are not recruiting participants and face the danger of not completing their enrollments. This could have devastating effects on the development of other life-saving therapies outside of this virus.

My questions are these:

  • Have you ever thought about volunteering for a clinical trial?
  • What are your reservations about participating in a trial?

For now, since the biggest question people seem to have for the news media on vaccines and trials is: why will this take so long? I am posting an info-graphic from St. Luke’s which nicely summarizes the process. I’ll be back later this week or next to follow further in bite-sized stories if there is interest in this topic.

phases of a clinical trial
Credit to St. Luke’s Cancer Clinical Trials Center for this graphic

Stay well and safe. Wash your hands. Wear your mask. Be kind.

cristy@meximinnesotana.com

Saturday Share – Vasudhaiva Kutumbakam

“The world is my family”, originally comes from the Upanishads, ancient Sanskrit tomes. In this time of a global pandemic and near-universal lockdown, it has salience in that we’re truly all in it together – East, West, rich, poor, black, white, brown, Hindu, Muslim, young, old – and the only way to overcome, recover, heal […]

via Vasudhaiva Kutumbakam — random rants ruminations ramblings

I have a growing interest in Sanskrit because of my studies of yoga. This blogger had a beautiful translation and discussion of this message that we can all appreciate at this time.

Enjoy!

cristy@meximinnesotana.com

Saturday Share – 10 Eye-Opening Writing Rituals from Great Writers — Victoria Ray

The author should die once he has finished writing. So as not to trouble the path of the text. Umberto Eco The truth is (social distancing or not), I am still a very disorganised author. How could I publish so many books? 🤨 I don’t know. That’s why I’m diving in into some rituals of the greatest,…

via 10 Eye-Opening Writing Rituals from Great Writers — Victoria Ray

For those of you who would like to establish a writing routine during quarantine, my friend and writer Victoria Ray has pulled together a few ideas for you.

Cheers & happy weekend,

cristy@meximinnesotana.com

Be the wordless person in the world for a moment (re-post)

***I am working on a separate writing project. I also went back to read some January 2019 posts. My writing can often give me reminders and clues to what I need to do now. So I’m re-posting an edited blog in that spirit.**

I borrowed the above title from a line in a guided meditation. I wish I could remember which one so I can properly attribute it. It reminds me that building more space into my weekly time for reflection and writing my own work is more challenging than I thought. I am seldom the wordless person. I have lots of words. And I share them freely.

new journal - be bold
My brand new journal, given to me as a Christmas gift from my mother-in-law.

When you write “morning pages” in your journal, you are the only one who can give yourself praise for getting your work done. Social media and the clicks and likes can be an addictive little “hit” for affirmation. As a writer, I write every day no matter what. It is like oxygen for me. But I am susceptible to that buzz that comes from others receiving the work well.

I am comforted to know that there is brain chemistry and neurobiology behind this, of course. Those clicks and likes produce a little hit of dopamine in your brain, and because we are social creatures, approval is important to us at a primal level. There is nothing wrong with that. It is very natural. Please have compassion for yourself if you worry sometimes about what other people think. Being part of a tribe or pack was how the mammals of today survived.

As a person who loves words, and who loves the ease of publishing that blogs can offer, it is even harder for me to be the “wordless” person. I joke to my husband that this blog is my little soapbox, so that I can express my ideas freely without subjecting him to all of my opinions.  So he is grateful that it exists. 😉

Some days, I am better off going into observer mode rather than writing publicly. It is like meditation, noticing what is going on in my body, and in my mind, while not attaching to it. Emotions come and go, as thoughts do. Ideas float through and sometimes I want to grab a pen. But I sit, and allow things to flow through. My ego-ic mind can be quite impressed with my thoughts sometimes. But my higher self, the watcher, just observes and allows. No thought is better than another, they just are.

Is it challenging to be the wordless person? Heck yeah, more than I ever realized.

Cheers,

cristy@meximinnesotana.com

 

Wellness Wednesday – Season’s Eatings: The Buffet Tour — Julie de Rohan

8 steps to help you navigate a Christmas buffet so you don’t overeat.

Season’s Eatings: The Buffet Tour — Julie de Rohan

Hi Friends,

I read Julie de Rohan’s piece and loved her advice. As someone has struggled with over-eating, I can relate to the stress that comes from the holiday food fest. Julie offers some excellent advice and wisdom on how to fully enjoy the experience, and to treat ourselves kindly in selecting food to truly savor.

Cheers,

cristy@meximinnesotana.com