Going faster than you think
When she has a goal
Going faster than you think
When she has a goal
I know I made a commitment a while back to a series on clinical trials and on resources for those who might be considering participating in a research study. I am working on collecting resources, but frankly it is taking time to evaluate the sources I have found.
Most of the resources I have scanned so far are podcasts and news sources. The ones that are targeted toward clinical research professionals are pretty dry and a little difficult to endure (even for me). The ones that are more “mass media” related tend to dumb down the research in ways I do not believe are helpful.
I am enjoying “Short Wave” by NPR as a science podcast generally. They report on the COVID situation of course, but they also report on a broader range of topics. I especially appreciated their coverage of “challenge trials” and the ethics of people volunteering to exposed to the virus. In a relatively short time, they manage to convey useful concepts that may help non-scientists understand important principles.
I continue to hunt for better material, or might just start creating material on my own if I cannot find sources that serve. I am never one to re-invent a wheel so scanning the landscape was my first part of this project.
Be well. Feel free to ask any questions here if you imagine you would have if you would consider volunteering for a research study. That way I will know what your doubts and fears might be and can better speak to what comes up. Thanks!
A lot of us are learning more about our history in response to recent events, protests and having a little more time on our hands. I confess that before this year, I knew very little about Juneteenth. I am an introvert and I do not gravitate toward large events.
This year, because it has become abundantly clear that people who identify as Black or African American have never been truly free in this country. We swim in history that is informed by a philosophy of white body supremacy.
I found a virtual Juneteenth event in Saint Paul that was co-sponsored by the Saint Paul Library. On the home page (linked above) are some beautiful read-aloud videos from staff there, children’s stories that have wonderful lessons for adults. Check them out. They can be resources to help teach children about inclusion versus racism.
I will be tuning in this Friday. It is time to learn and grow, time to come together as human beings “alone together” on this tiny planet.
Happy weekend, friends.
I find myself celebrating the past year for my birthday but feeling quieter and more reflective than in past years. When I read that George Floyd was also 46 years old I realized we shared an age, but are separated by a yawning gap of white body privilege. His life was cut short, and my life continues.
I spent the past week re-reading portions of “My Grandmother’s Hands: Racialized Trauma and the Pathway to Mending Our Hearts and Bodies” by Resmaa Menakem. I downloaded the audio book so I could listen to it as well. Coincidentally, Krista Tippett had a conversation with Resmaa on her podcast On Being just before the pandemic, but it aired only within the last week. If you have not heard it, I recommend a listen.
There is also a simple body practice that is about 4-5 minutes that Krista released yesterday that I really love. It helps us engage the vagus nerve and the psoas muscle in a way that is calming. Resmaa describes how “bodies of culture” must orient when they feel in danger.
One of my loyal yoga practitioners (Jackie) told me last week that Resmaa’s book is sold out right now, since she had looked for it online. I find that wonderful and hopeful. Maybe we white folks are ready to grow up and out of our privilege in a way that can support “bodies of culture” (I love Resmaa’s terminology) to achieve their dreams as well.
We must do the work, and we must begin now, no matter how uncomfortable it may feel at first. One thing that yoga teaches us is that we can stay with discomfort, a moment longer, to hear what it has to say. I love it that we have the tools to do that. It is our practice off the mat, and it is why we can succeed in this effort.
As a white woman from a multi-cultural (Swedish Mexican) heritage, I have struggled with knowing what my role can or should be in this effort. I have to admit I don’t have a complete answer right now, except to highlight voices that may not otherwise be heard. I also hope to hold space for other “white bodies” that know we must be part of the solution here.
Resmaa recommends we do our own work, with each other, to educate and get over our “fragility” around race discussions. In my 46 years of life I have never worried about being killed by a police officer. My level of discomfort is a tiny sliver compared to a daily stress of someone who’s life has been cut short by a police officer. While police bodies also need to do their own work, we can and must begin in our own bodies.
I close this reflection by saying all of this begins in our bodies. We unwind our stories and social conditioning by exploring their origins, questioning the protective habits that our “primitive lizard” brains developed, and by learning better ways to sharing the bounty we all have. When all do better, all do better (a phrase Paul Wellstone used to use frequently).
P.S. Resmaa’s Cultural Somatics Institute offers a free 5-day e-course which summarizes the principles in his book. The videos are short and they are helpful. They will make you want to get the book.
I write with a sad heart and an all too familiar feeling of distress at the news of another unarmed black man being murdered. His name is George Floyd. I support the Black Lives Matter movement. I believe we all need to become aware of our privilege and how white body supremacy has functioned since the early days of this country’s history. It will help us understand what keeps happening.
Last summer I read a book called “My Grandmother’s Hands: Racialized Trauma and the Pathway to Mending Our Hearts and Bodies.” It helped me to see and understand the deeper historical forces at play within white bodies, black bodies and police bodies.
As a yoga practitioner I appreciate the exercises that Menakem offers for the body, to be done alone and in trusted communities. He writes sections in the book for black bodies, white bodies and police bodies. A couple days ago I realized he also has a free e-course on Racialized Trauma, offered by the Cultural Somatics Training & Institute. While it is a 5-day course, each of the videos are only 10-15 minutes, and it introduces the major themes covered in the book.
I highly recommend the course or book, as I think Menakem helps us to understand how we swim in a larger system of injustice. While we are not personally responsible for creating the system (and there are historical factors that are larger than us) we are responsible for dismantling and slowly unwinding it.
While I don’t claim to know anything more than what I have observed and absorbed over the years, racism can be subtle poison. Current times are revealing how black and brown bodies and women’s bodies are subject to even greater risks for the COVID-19 infection.
I have no answers. I am a white person. Other voices need to be heard and highlighted. All I know is that I’m going to keep doing my personal work in bodyful and somatic ways with self-compassion and love for all those that are hurting. Hopefully I can connect with communities that also want to engage in these efforts.
Stay safe. Be kind. Wash your hands. Wear your mask.
I have been wondering how best to use my expertise and skills to be of service during the COVID-19 situation, and brainstorming ways to put my experience to good use in a new job.
Offering yoga online has been very fulfilling, and it has allowed me to contribute to keeping a small business running that had to close acupuncture operations for 2.5 months. I love getting to know my students better and the Sunday (Re)treats have been my favorite.
It has also occurred to me that clinical trials are running for treatments and for vaccines to help save lives and stop the spread of this infection. I have 12+ years of experience as a clinical researcher, and I am good at explaining technical concepts to non-scientists in a way that makes sense. Mission taking shape…
I have noticed that Universities have difficulty explaining clinical trials to potential participants in ways they understand. Many of their resources are text-heavy and use a lot of technical terms. It is a chronic problem for the informed consent process as well, which is required before volunteering to participate in a trial.
In service to helping people understand which trials might be the best fit, I am considering a series on de-mystifying the clinical trial process. It may be a matter of curating the best content that is available and sharing it. I am strongly committed to advocating for participants who may be confused and want clarification of their questions.
The ACRP (Association of Clinical Research Professionals) explains that with the pandemic looming large at hospitals, many trial sites are not recruiting participants and face the danger of not completing their enrollments. This could have devastating effects on the development of other life-saving therapies outside of this virus.
My questions are these:
For now, since the biggest question people seem to have for the news media on vaccines and trials is: why will this take so long? I am posting an info-graphic from St. Luke’s which nicely summarizes the process. I’ll be back later this week or next to follow further in bite-sized stories if there is interest in this topic.
Stay well and safe. Wash your hands. Wear your mask. Be kind.